Your outreach service, HFNZ youth hui, WFH Global Policy and Access Summit, Health sector changes, Upcoming events, and all the Latest News from HFNZ...
The latest from the Haemophilia Foundation of New Zealand - July 2022
Your Outreach Service
As Tara, our new Southern outreach worker, gears up to start on 08 April, it's a good time to talk about who the Outreach service are, and what they have to offer.
The HFNZ outreach service covers all of NZ, based on four specific regions: Northern, Midland, Central, and Southern. Northern covers the top of the motu, from Cape Reinga to the Bombay Hills. Then we move into Midland, which continues down as far as Taupo, before turning into the Central Region. Central continues to the bottom of the North Island. Everything south of that is Southern, including Wharekauri, the Chatham Islands.
The outreach service exists to support and advocate for HFNZ members across Aotearoa. Every member has different needs, so the way each OR worker engages with members is flexible. Likewise, the region each OR worker covers is large, so they have to find ways to cover all corners. For those close to home-base, a visit isn't too difficult. Sometimes, however, it means using other methods, like telephone, email, and video calls. The OR team also undertake regular trips around their regions, connecting with those further afield. 
In these pandemic times, some members don't really want visitors, which we totally understand. The OR team are fully vaccinated, and will always wear a mask when meeting with you. If you'd prefer another way of meeting, just let them know.
Outreach is not a crisis service, but they can support you to access the service you may need. If you want to speak to an OR worker you can contact them by calling 0508 FACTOR (322 867). Individual OR contact details are available on our website:
HFNZ OR Workers have their own individual skills and strengths, and come from a variety of backgrounds. Darian, the Northern OR worker has a counselling background, while Laura-Lee in Midland is a registered social worker. Lynne, our longstanding Central OR worker comes from teaching, and has a vast store of bleeding disorder knowledge. Tara, our newest recruit for the Southern region, is a registered nurse, who comes to us via the NZ Blood Service. You can read more about the HFNZ staff team here:
Over the next few weeks we'll be filling you in on other parts of the outreach service, and introducing you more thoroughly to the OR workers.
HFNZ Youth Hui 2022

Join us for a weekend of socialising and networking with other youth aged 18-30 from across the country. 


When: 2 - 4 September 2022
Where: Wellington 

It’s been a minute since we managed to get together because of Covid! This weekend is about reconnecting with each other and rebuilding those friendships that we have all missed out on over the past few years. 

An escape room, axe throwing and dinner event are planned with plenty of time to just catch up. 

There’ll also be an opportunity for you to share your ideas about what you want to see for youth as well as ask any burning questions you might have. 


To register for this event, click here

Women's Weekend
The recent Women's Weekend in Dunedin went very well, and was greatly appreciated by those in attendance. This event had been postponed a number of times due to the impacts of the current Covid pandemic. After more than three years since the last event, the women really enjoyed reconnecting and learning together.
We had 36 women in attendance, as well as four staff, all of whom enjoyed the varied social anad educational programme. Of particular note were Dr Claire McLintock's keynote speech on Menstruation and psychology, Dr Richard Egan's workshop on Managing life in uncertain and changing times, and the medical panel comprised of haematologist Catherine Neal, physiotherapist Lee Townsend, and clinical nurse specialists Maureen Campbell and Kathy Fawcett. Many thanks go to these wonderful supporters.
You can read more about this fantastic event in the upcoming issue of Bloodline.
WFH Global Policy and Access Summit

The second edition of the WFH Global Policy and Access Summit (GPAS) will take place on October 27 and 28, 2022. Join us to:

  1. Share strategies for sustaining and advancing bleeding disorders care in the fast-changing pandemic world.
  2. Promote dialogue and knowledge sharing between national member organizations (NMOs), healthcare providers, and national governments.

Presentations and discussions during the two-day virtual summit will centre around improving care and access to treatment. The conference will include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates.


The WFH Global Policy and Access Summit (GPAS) is a unique opportunity to inform, discuss, and exchange knowledge on strategies to increase equitable access to care and treatment for the global bleeding disorders community. We look forward to connecting with you virtually this October!


Click here to find out more:

Health sector changes

You may be aware that there have been some major changes to the way Aotearoa's health system works. Gone are the days of District Health Boards (DHBs), instead we now have Te Whatu Ora | Health New Zealand, and Te Aka Whai Ora | Māori Health Authority.


Te Whatu Ora
Te Whatu Ora leads the day-to-day running of the health system across New Zealand, with functions delivered at local, district, regional and national levels. It weaves the functions of the 20 former District Health Boards into its regional divisions and district offices, ensuring continuity of services in the health system.
Te Whatu Ora manages all health services, including hospital and specialist services, and primary and community care. Hospital and specialist services are planned nationally so they can be delivered more consistently across the country. It also manages national contracts.
Primary health, wellbeing and community-based services are planned and then purchased through the four regional divisions of Te Whatu Ora. Each region works with their district offices, located closer to local communities, to develop and implement plans based on local needs to improve the health and wellbeing of communities.
Te Whatu Ora is also responsible for improving services and outcomes across the health system. We do this in partnership with the Māori Health Authority.
Find out more about Te Whatu Ora here:
Te Aka Whai Ora
Te Aka Whai Ora's focus is to create a new health system focused on people – on patients, on communities, and on kaimahi/healthcare workers. Their role is to lead and monitor transformational change in the way the entire health system understands and responds to the health and wellbeing needs of whānau Māori.
Everyone who calls Aotearoa New Zealand home deserves a strong public health system that works for us all. Everyone should receive the right type of healthcare when, how and where we need it – but this isn’t happening, especially for whānau Māori.
The reforms create a fairer, more coordinated and connected system to deliver better health and wellbeing for all.
Māori are crucial to this kaupapa. Whānau deserve to live longer and healthier lives, and for too long they have suffered poor health outcomes that are unfair, unjust – and largely avoidable.
This is central to Te Tiriti o Waitangi and ensuring everyone in Aotearoa has the same access to good health outcomes.
Find out more about Te Aka Whai Ora here:
Te Wero: Supporting our young people
Te Wero is a digital tool to build rangatahi self-determination with hauora and health.
Te Wero are seeking rangatahi to become advisors to lead in the design and development of a digital platform that signposts health and hauora support and resources. The goal is to co-create a safe space for you to experience tino rangatiratanga (self-determination).

As you know, there are lots of resources and services in Aotearoa that support youth, but where do you start to look for what you need? Te Wero envisage building a digital platform that brings all this information together to help you easily find, use and share it. 

They’re starting by running a youth survey and recruiting passionate rangatahi who are interested in: design, digital, media, leadership, project management, health and hauora, education, marketing and communications, social services, community engagement and equity. They also have paid advisor positions available that will provide experience in the health space that can be added to your CV.​

They’re also looking to collaborate with organisations that work with and for youth so the digital solution will be informed, accessible and inspiring.  A first step will be to encourage organisations to offer rangatahi representatives to work with us.
Click here to find out more about Te Wero:
Keep your member details up to date
In order to get the most out of your membership, it's important to keep your details up to date. The key details are email address and date of birth. 

Posting invitations and information to members is an expensive business, and where possible we would prefer to make contact electronically. If you have an email address, but you're not sure that we have it, please let us know.

If we have no DOB for you we can't filter you in to age-based mailing lists, like Adult Weekend, Youth Camp, and Women's Weekend. Again, if you're not sure that we have your DOB, please let us know.
Upcoming events
Here's what HFNZ have lined up for members in the coming months:
Youth Leadership Hui
2 - 4 September, 2022, Wellington.
Adult Weekend
25 - 27 November, 2022, Auckland.
27 November, 2022, Auckland.
National Family Camp
11 - 14 April 2023 in Ngāruawāhia.
If you have any questions about any of these events, please don't hesitate to drop us a line at
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