National family camp, Seth, Welcome to Vic, Planning, Upcoming events, Latest news...
The latest from the Haemophilia Foundation of New Zealand - June 2023
National Family Camp 2023

On 11 April over 80 people gathered in Ngāruawāhia for the 2023 National Family Camp. 


Young families, where a child is newly diagnosed with a bleeding disorder, often need support and information to manage the impact of the disorder on their family. The National Family Camp enables parents to access education in a supportive environment, while their children are enjoying their own recreational programmes. Opportunities are included for families to mix and mingle so that they can establish friendships and develop support networks with other families who understand and live with bleeding disorders. 


This is the most important event in the HFNZ calendar. This year we ran a fantastic programme, full of interesting and fun sessions for adults and for children, which was enjoyed by all. Of particular note were the outings to the Tūrangawaewae marae, and to the Hamilton Zoo. 


Keep your eyes peeled for the report in the next issue of Bloodline

Congratulations Seth
National Family Camp 2023 marked a very special occasion for one of our younger members. Seth Brackstone administered his own treatment for the very first time! 
This is an awesome milestone for anyone with a bleeding disorder, and we are very proud of Seth.
On the morning in question Seth was understandably nervous. Under the watchful eye of haemophilia nurse specialist BJ Ramsay, Seth prepared his treatment product, before being guided through the process. It went very smoothly, and Seth did very well.
Being able to administer his own treatment is a big step towards independence for Seth. He is now able to attend camps and other away-from-home activities, comfortable in the knowledge that he can look after himself appropriately. 
Word is that he has continued to do his own treatments ever since. Well done Seth!
Welcome to Vic!
We are very happy to announce that we have a brand new outreach worker in the Southern region. We're please to welcome Vic Turner into the HFNZ whānau.
Here's a bit about Vic, in her own words...

"Kia ora everyone. My name is Vicki Turner although I do prefer Vic. I'm a proud 50 something wife and mother. My husband Burt and I manage a blended family with 6 combined offspring ranging from 35 years down to 12 years, with 2 Moko. 


Burt, Hugo(12), and I live on our 52 hectare horse/gorse block in Okaruru bay (Goughs Bay) Banks Peninsula, Canterbury.


I originally trained as a nurse in the 80s at Burwood Hospital,then transferred to Templeton hospital until its closure. After this I took employment  at a treatment facility for young men before formalizing my training as a counselor at Vision college. I have since specialised in Equine assisted psychotherapy which I have been using in my private practice for the last three years. 


My husband and I have recently swapped positions. He now looks after the house,the horses and teaches Hugo while I have the office and begin my exciting career with the Haemophilia Foundation."
Sarah, Joy, Colleen, and Linda at youth camp 2015
HFNZ event calendar
Now that National Family Camp has successfully completed, we're looking ahead to all the other targeted events that we run.
In order to make plans and book suitable venues, we're thinking about what our key national events are, and when we're going to run them over the next 2-3 years. Our goal has always been to run each of these key events once every two years.
Here's the plan so far:
  • 15 - 17 September 2023: Youth (18-30) event in Wellington
  • January 2024: Youth (18-30) sailing event in Auckland
  • 1-3 March 2024: Teen and Youth Camp in Auckland
  • 26-28 July 2024: Women's Wellness Weekend in Taupō
  • 6-9 February 2025: National Family Camp in Ngāruawāhia
  • Oct/Nov 2025: Adult wellness weekend in Christchurch. 


Of course, things like pandemics, cyclones, and earthquakes can put spanners in the works. However, getting broad plans in place early minimises disruptions in the event of unforeseen circumstances.

Coming up at WFH
The World Federation of Hemophilia regularly run in-person and online opportunities for education. While these are often not timed well for us here in Aotearoa, they are valuable learning experiences, and often involve opportunities to share and interact.
You can find out what's coming up here:
WFH Global Policy and Access Summit (GPAS)
The third edition of the WFH Global Policy and Access Summit (GPAS) will take place from July 6 to 7, 2023. Presentations and discussions during the two-day virtual summit will centre around increasing access to diagnosis, treatment and care for people living with bleeding disorders. The conference will include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates
WFH Global Forum
The 13th World Federation of Hemophilia (WFH) Global Forum will take place in-person from November 17 to 18, 2023, at the Fairmont Queen Elizabeth hotel in beautiful Montreal, Canada. This year’s forum will focus on the latest advances in treatments and technologies for bleeding disorders.
Regional happenings
There are a couple of regional events coming up this month.
Northern coffee group
On Sunday 25 June at 10:30am the Northern region are holding their second coffee group at Columbus Coffee in Sylvia Park Mall. The Northern team hope that this will become a regular event. Contact Darian at 027 512 1114 to find out more.
Southern welcome dinner
With a new outreach worker on board, it's only fair that the southern crew get together and meet her. We'll be having a dinner in the next month, so keep your eye on your inbox.
Keep your member details up to date
In order to get the most out of your membership, it's important to keep your details up to date. The key details are email address and date of birth. 

Posting invitations and information to members is an expensive business, and where possible we would prefer to make contact electronically. If you have an email address, but you're not sure that we have it, please let us know.

If we have no DOB for you we can't filter you in to age-based mailing lists, like Adult Weekend, Youth Camp, and Women's Weekend. Again, if you're not sure that we have your DOB, please let us know.
Upcoming events
Here's what HFNZ have lined up for members in the coming months:
Northern coffee group
Sunday 25 June @ 10:30am at Columbus Coffee in Sylvia Park Mall. 
HFNZ Board meeting
01 July 2023, in Wellington
Northern Butterfly Creek outing
23 July 2023 at Butterfly Creek, Auckland.
National Youth Committee event
15 -17 September 2023, in Wellington.
If you have any questions about any of these events, please don't hesitate to drop us a line at
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