Youth camp, Matariki,  In memoriam: Dr John Carter, WFH webinars, Upcoming events, and all the Latest News from HFNZ...
The latest from the Haemophilia Foundation of New Zealand - June 2021
Youth Camp is ready to go!
HFNZ Youth Camp 2021 is all set to go. The programme is locked in, our leaders are getting excited, and we have a great group of kids champing at the bit to get down to Christchurch for a weekend of fun and learning.
We have some great activities lined up for this edition of youth camp. We're off rock-climbing, we're learning about mountain climbing, we're getting our fashion design on, and a whole lot more besides.
Keep your eyes peeled for the report in the next edition of Bloodline, in August.
On the morning of July 2nd I found myself up nice and early on a very crisp morning indeed to whakanui, to celebrate the ushering in of a new year. I was so happy to see Matariki again and in my heart I reflected on what this time means. I thought about whānau and special people in my life who have recently passed since last year, I thought about the things they have taught me and the memories they have instilled in my life. I reflected also with a sense of gratitude in my heart for what I have in this present moment, and I had a sense of hope in my heart with the possibilities for the future.
Matariki the star is different things and different names in different regions of Aotearoa, for example up north they celebrate Puanga and not Matariki. So it is really important we acknowledge the local knowledge and histories within the places that we live. You may be wondering ‘I thought Matariki was seven sisters’? Yes, this is correct and is the case in other places around the world too, like Rome who know Matariki as Pleiades and in Japan where they call it Subaru. In different hapū and iwi there have been up to 13 stars seen and recorded in manuscripts. However, recently in Māori culture it has become more common to know Matariki as nine stars with male and female combinations.
This time of year makes me think. In NZ we follow a Gregorian calendar even though we are in the southern hemisphere. Our sense of time and time markers come from a colonial and western world view. In winter time we should be resting and slowing down, yet our holiday times are during summer where the days are longer. Generally our NZ culture is really busy and full on and according to our Matariki timetable I wonder if she see’s us as all out of alignment. 
I am so grateful for our national day to celebrate Matariki starting in 2022, I am really enjoying seeing local councils, schools and communities come together and share kai and celebrations of a national new year. May we have a wonderful year ahead. May we be kind in our interactions with others and be more mindful at this time of year. 
Ngā mihi o te wā ki a koutou e te whānau. 
Rosalie Reiri
In memoriam: Dr John Carter
Associate Professor John Carter MNZM, died on 2 June 2021, surrounded by his family. The funeral of the 70-year-old doctor and associate professor at St John's in the City attracted a huge crowd and an outpouring of respect for someone who saved many lives.
John was a greatly respected and admired member of the New Zealand haematology community and was Clinical Lead for Haematology at the Wellington hospital until his retirement in 2018. In recognition of his services to medicine John was a recipient of the Member of the New Zealand Order of Merit in 2011. Instrumental in establishing the New Zealand Blood Service, Dr Carter co-authored the Carter Marshall Report, with Keith Marshall​, recommending the creation of the national service. He was also a highly regarded teacher and lecturer at the Wellington Clinical School, where he regularly received the ‘Best Teacher’ award from undergraduate students. 
Many HFNZ members will remember their interactions with Dr Carter. He had a natural ability to relate to patients with compassion, no matter how difficult the circumstances. He was an enthusiastic supporter of HFNZ and our members, who will be missed by those who have come into contact with him.
Our thoughts and our condolences go out to John’s wife Helen and their three children.
vWD Survey
HFNZ are looking at how we support members with von Willebrands and other rare non-haemophilia A or B bleeding disorders. The first step is to find out what you think. To that end we emailed a survey link to all those members that fit the criteria. If you have vWD, or another rare non-haemiophilia A or B bleeding disorder, and you missed the survey link, drop us a line at and we'll send it out for you.
Contacting the HFNZ staff team
With the slow decline in the use of carried mail, HFNZ have changed the way we receive letters and other hard-copy correspondence. Instead of Outreach Workers each having their own PO Box, from now on we'll have just two PO Boxes: one in Wellington, and one in Christchurch. Anything we receive in those boxes will be scanned on to the people who need it.
If you want to send mail to Sue, Deon, or Lynne please address it to:
PO Box 24014
Manners St
Wellington 6142
If you want to send mail to the admin team or Rosie please address it to
PO Box 7647
Christchurch 8240
20th Australian Conference on Haemophilia, VWD, and Rare Bleeding Disorders
The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders will take place from 8-9 October 2021 virtually.   
If you have ever wanted to attend a conference and couldn’t because of time constraints, travel or costs, this is the perfect time to do so! 
The program will be stimulating and informative and there will be presentations from people living with bleeding disorders as well as expert health professionals and other speakers from Australia and around the world. 
WFH: Upcoming webinars
The World Federation of Hemophilia has a number of useful educational webinars coming up. These are often at difficult times for us in NZ, but they're well worth it if you can be up at the right time. They are also often recorded, and made available to those who have registered.
Here's what's coming up:

WFH Practical Education on Bleeding Disorders: Knowledge for All webinar series
When: Tuesday, July 28, 2021, 12-2AM NZST, Tuesday, October 13, 2021, 12-2AM NZST, Thursday, December 17, 2021, 12-2AM NZST.


Global Policy and Access Summit
When: September 8 & 9, 2021. More info coming soon.


Global Forum on Research and Treatment Product for Bleeding Disorders
When: November 2021. More info coming soon.

Member Details
In order to increase the reach of HFNZ communications, and improve member outcomes, we continue to update member details in the database. The most pressing details are email addresses and dates of birth. Over the coming weeks Outreach Workers will be contacting members to update their details.

Having a current email address for you and your whānau is important as we try to manage costs. Posting invitations and information to members is an expensive business, and where possible we would prefer to make contact electronically. If you have an email address, but you're not sure that we have it, please let us know.

The other essential detail is date of birth. We need this so that we can be sure you're on the list for age-restricted events, like Adult Weekend, Youth Camp, and Women's Weekend. If we have no DOB for you the database won't filter you in to age-based mailing lists. Again, if you're not sure that we have your DOB, please let us know.
Southern walks

Hello Haemo Hikers's and Haemo Hiker's adjacent.


Just a quick shout out to the crew pictured for coming along, in the cold and getting their exercise in bright and early on a Sunday morning. 


Sunday was all about the lad's as we motored up Victoria Park. Powered by testosterone and caffeine; we made short work of our well-worn track. 


Such a handsome lot, considering the Yakka put in. I'm sure you all agree.


Please keep an eye out for Ross's update for our next walk, we are hoping the more photogenic members of our group return for the next photo, at least...


Keep an eye on your inbox for more info if you're in the Christchurch area. Contact Ross at or Kyle at for more info.
Upcoming events
Here's what HFNZ have lined up for members in the coming months:
Youth Camp
17 - 20 July. 2021.
Blue Skies, Kaiapoi.

Women's Weekend
2021. Date and venue to be advised.

National Family Camp

2022. Date and venue to be advised.

If you have any questions about any of these events, please don't hesitate to drop us a line at
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PO Box 7647, Sydenham, Christchurch

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