Covid

on 17 April, 2022 it was World Haemophilia Day. The theme of the event this year was“ Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy“.

 

By raising awareness and bringing hemophilia and other inherited bleeding disorders to the attention of policymakers, we can increase sustainable and equitable access to care and treatment.

 

HFNZ again managed to get several local landmarks lit up red for WHD. 

Sadly, we have to bid farewell to our awesome Southern Outreach Worker, Rosie Maguire. Rosie is taking advantage of the opportunity to live and work overseas, while she's young enough to get a special visa. She's managed to secure a position as an early childhood teacher in Germany, and left NZ on 03 May.

 

Although she's only been with us just over a year, she's made a fantastic contribution to the HFNZ whānau. She has been a real driver in the events and activities undertaken by the Southern region over the last year, and has contributed significantly to other National events. We will miss her.

Before she left Rosie gave us the following message to share with members:

 

Kia ora koutou Southern members,

 

I have decided to work abroad for six months to gain some overseas experience and see another part of the world. Therefore, I have had to make the difficult decision of leaving this wonderful Southern community and the Foundation. It has been a pleasure getting to know and work with you over the past 14 months. Thank you for your kindness in welcoming me. Thank you for your honesty in sharing a piece of your lives with me. 

 

I hope to see you again in the future. 

 

Ngā mihi nui,

 

Rosie

 

We are currently advertising for a new Southern Outreach Worker. You can find out more here: https://www.haemophilia.org.nz/about-us/join-the-team/

We're on the home stretch for the 2022 Women's Weekend. After a lengthy postponement and several programme changes we're now all set to go.

 

The programme is looking very strong, with plenty of opportunities for reconnection, as well as some fantastic educational sessions with some excellent speakers.

 

Here are some tempters:

It's all very exciting, and there are now five extra spaces available due to cancellations. If you're interested in attending reach out to us at info@haemophilia.org.nz.

 

First in best dressed!

Last Saturday, 30 April, the Northern crew were finally able to hold their long-awaited rockclimbing event. This event has been in the works for several months, but has been repeatedly postponed due to Covid. 

 

While there was only a small group attending, those who were there had a great time. Well done to the Northern team for persevering with this. Any opportunity for members to reconnect after the tough times we've had is truly valuable.

 

Darian managed to get a couple of candid shots in too...

Here's your last chance to register for the WFH 2022 World Congress. This important event takes place from 8 to 11 May, 2022. 
 
While we will not be sending anyone in person this year, HFNZ will pay the registration fee for any HFNZ member who would like to attend World Congress virtually. As HFNZ President Deon Yorks says, "it’s a great opportunity for people to learn what’s happening without leaving the house". 
 
Early-bird registration rates are no longer available. Virtual registration is now $70usd.
 
Just click the button below, register and pay, then send us the reciept for reimbursement.

The full program is now available for the WFH 2022 World Congress! With many educational sessions to choose from, participants will have the opportunity to update their skills and learn from our global leaders in the bleeding disorders community.
 
Click below to see the full program.

A big thank you goes out to Gwyn Upritchard. On Anzac weekend 2022 Gwyn walked 57km, doing circuits around the Appleby sports grounds in Invercargill, to raise awareness of the NZ Blood Service and to fundraise for HFNZ.

Gwyn walked from 7am on Saturday 23 April, and raised $412 for HFNZ.

 

This is a great initiative, and we really appreciate the support. Thanks Gwyn!

In order to get the most out of your membership, it's important to keep your details up to date. The key details are email address and date of birth. 

Posting invitations and information to members is an expensive business, and where possible we would prefer to make contact electronically. If you have an email address, but you're not sure that we have it, please let us know.

If we have no DOB for you we can't filter you in to age-based mailing lists, like Adult Weekend, Youth Camp, and Women's Weekend. Again, if you're not sure that we have your DOB, please let us know.

Here's what HFNZ have lined up for members in the coming months:

 

National Family Camp
New dates confirmed for 11-14 April 2023 in Ngāruawāhia.

 

If you have any questions about any of these events, please don't hesitate to drop us a line at info@haemophilia.org.nz.