Covid, My Vaccine Pass, HFNZ National Family Camp, Women and Bleeding Disorders, Upcoming events, and all the Latest News from HFNZ...
The latest from the Haemophilia Foundation of New Zealand - November 2021
Covid

On Monday 29 December the Prime Minister announced that Aotearoa New Zealand would move into the Covid Protection Framework (traffic light system) as of Friday 03 December.

 

Most of the North Island, and all of the South Island will start at Orange. Northland, Auckland, Taupō and Rotorua Lakes Districts, Kawerau, Whakatane, Ōpōtiki Districts, Gisborne District, Wairoa District, Rangitikei, Whanganui and Ruapehu Districts will move to Red.

 

Find out what the setting is where you are here: https://covid19.govt.nz/traffic-lights/traffic-light-map/

 

Other than the existing Auckland boundary, which lifts on 17 January, there will be no new restrictions on travel between regions.

 

You can find out more about the traffic light system here: https://covid19.govt.nz/traffic-lights/.

 

Here is a useful document to help you untangle some of the language being used at the moment: COVID-19_Protection_Framework_Glossary_-_29.11.21.pdf

 

Vaccination and Vaccine Passes

 

At HFNZ we support the Covid-19 vaccine rollout, and ask all our members to be fully vaccinated. We want to make sure that all of our HFNZ whānau are safe and protected from the most serious effects ot the virus.
 
The best way to make a good decision is with good information. There is a lot of unreliable misinformation out there. To learn more about the vaccine, we recommend the following:
The sooner we are all vaccinated, the sooner we can get back to normal.
 
To ensure the safety of members, HFNZ asks you all to be fully vaccinated when attending HFNZ events, such as the Family Camp in April and Women’s Weekend in June, 2022. To book your vaccine go to https://bookmyvaccine.covid19.health.nz/
 
Once you are fully vaccinated you can download My Vaccine Pass. This is an official record of your COVID-19 vaccination status for use within Aotearoa New Zealand. It will allow you to access events and venues operating under the traffic light system.
 
You may not be able to access the venues and/or events that you'd like to over the summer, and beyond, if you do not have My Vaccine Pass. This will include venues for upcoming HFNZ events, like National Family Camp and Women's Weekend.
 
Find out more about how you can get yours, and about eligibility and exemptions here: https://covid19.govt.nz/covid-19-vaccines/covid-19-vaccination-certificates/my-vaccine-pass/
HFNZ National Family Camp
Planning continues for National Family Camp on 19 - 22 April, 2022 at the Christian Youth Camp in Ngāruawāhia.
 
It is likely that you will need a My Vaccine Pass to use the venue, so please make sure you are fully  vaccinated, and get your pass as soon as you can.
 

National Family Camp is for families where a child aged 0 - 10 has a diagnosed bleeding disorder, or is the sibling of of a child with a bleeding disorder. 


Young families, where a child is newly diagnosed with a bleeding disorder, often need support and information to manage the impact of the disorder on their family. The National Family Camp enables parents to access education in a supportive environment, while their children are enjoying their own recreational programmes.

 

Opportunities are included for families to mix together so that they can establish friendships and develop support networks with other families who understand and live with bleeding disorders. 

 

Registrations will open Before Xmas, so get vaxxed, keep an eye on your inbox, and look out for the next Pānui!

Women and Bleeding Disorders
Recently the European Haemophilia Consortium held a webinar on Women and Bleeding Disorders on Clinical Protocols and Representation in Data Collection.
 
This was a very interesting session, during which the next Conference on Women and Bleeding Disorders was announced. This event will be held on 19-22 May 2022 in Basel, Switzerland and online. More info about this event will be available soon.
 
If you'd like to keep up with this and other EHC events, you can sign up for their newsletter here, or find them on Twitter, Facebook, or LinkedIn.
Living In and Living Beyond the Pandemic
Recenty, HFNZ CEO Sue Ellis attended a webinar from Beyond Recruitment hosted by Registered Organisational Psychologist, Megan Jenkins. This session was all about learning tips and tricks for helping teams cope with the ongoing challenges of the pandemic. Sue found this very valuable, anbd wanted to share it with all of us.
 
The webinar covered interesting topics including the importance of mindset and retaining hope; simple tools for managing dips in motivation, such as breaking work into smaller tasks; and creating a focus on well-being, including self-care as leaders.
 
If you're interested in viewing the session, you can check it out on YouTube below.
Youth leadership training
HFNZ values the input of the National Youth Committee, and is committed to fostering the development of our young leaders, who will go on to become the leaders of the Foundation.
 
Following discussions with some of the youth leaders at Youth Camp, and at the National Council meeting which followed, we've made a commitment to ongoing youth leadership training events. 
 
The first event is being planned for Wellington in late January or early February 2022.
 
We are currently doing planning around dates etc., and will begin planning in earnest very soon. Watch this space...
 
If you're interested, or have some ideas, please let us know by dropping us a line at info@haemophilia.org.nz
WFH 2022 World Congress
Registration is now open for the WFH 2022 World Congress. This important event will take place from 8 to 11 May, 2022. Here's what the organisers have to say about the event:
 
The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are excited to welcome the global bleeding disorders community to the WFH 2022 World Congress — the first major hybrid event of the international bleeding disorders community. The in-person component of the hybrid Congress will take place in Montreal, Canada, with select sessions being broadcast through our virtual platform to an expected audience of more than 8,500 virtual attendees.
 
The Congress program will cover the latest developments in our field, current patient healthcare issues, and the challenges ahead for the management and treatment of hemophilia, von Willebrand disease, rare factor deficiencies and inherited platelet disorders. In addition to this rich scientific content, there will also be ample opportunities for participants to make new friends and reconnect with old ones.
 
WFH: Upcoming webinars
The World Federation of Hemophilia has a number of useful educational webinars coming up. These are often at difficult times for us in NZ, but they're well worth it if you can be up at the right time. They are also often recorded, and made available to those who have registered.
 
Here's what's coming up:
 
WFH Practical Education on Bleeding Disorders: Knowledge for All webinar series
When: Thursday, December 16, 2021, 2-4AM NZDT
More information
 
2022 World Congress
When: May 8-11, 2022
More information
Keep your member details up to date
In order to get the most out of your membership, it's important to keep your details up to date. The key details are email address and date of birth. 

Posting invitations and information to members is an expensive business, and where possible we would prefer to make contact electronically. If you have an email address, but you're not sure that we have it, please let us know.

If we have no DOB for you we can't filter you in to age-based mailing lists, like Adult Weekend, Youth Camp, and Women's Weekend. Again, if you're not sure that we have your DOB, please let us know.
Upcoming events
Here's what HFNZ have lined up for members in the coming months:
 
Youth Leadership Training
Wellington. Date to be confirmed.

National Family Camp

19 - 22 April, 2022. Christian Youth Camp, Ngāruawāhia.
 
Women's Weekend
Postponed until 10-12 June, 2022. Dunedin.

If you have any questions about any of these events, please don't hesitate to drop us a line at info@haemophilia.org.nz.
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